Sunday, 26 July 2015

Speaking the truth to power

Honouring a special legacy Evelyn Gillan

I'm in the middle of a campaign to get selected to stand for Holyrood in Edinburgh just now. It's hugely competitive and so it's really important that people do get a sense of who you are and why you want to stand. For me it's about bringing a lifetime of experience anda real passion to use that experience to improve people's lives and ensure everyone gets the opportunities I have had. To bring more humanity in to our decisions not only in government but in our public services and private sector organisations too. To make love a driver for policy and not let a discredited system of economics dominate. I also want people to know that all that has affected me in life has shaped me, including living with two diagnoses of cancer in the past.
So today I posted a short video of why public services and the third sector matter to everyone but especially to me. In an email to the members who have a vote I described how my working class background and life experience including living with breast cancer had shaped who I am and why I want to represent them. And then I read this posthumous article by Evelyn Gillan .
I had met Evelyn a few years ago at a third sector leader event and really warmed to her. I knew she was ill and heard with great sadness of her death this week. But when I read her article I was stunned. Not only did I understand and relate to so much of what she said, it also seemed like she was describing my life too. But of course I was luckier, I have survived my cancer. She spoke my truth, in the words of the song she "sang my life with her words".
I urge you to read her article, penned with the clarity of approaching the end of life and the absolute truth of having nothing to lose. Her words describe so well why I too am driven to create a different future for our  people. Like Evelyn I believe they deserve so much better than the neoliberal experiment that has caused so much damage.
As I read it I felt tearful as it moved me on so many levels. The importance of love and family is a key theme. Thanks for writing so eloquently, Evelyn, may you rest in peace but also know that you are not alone in seeking the change you hoped for and I for one will do my best to do my bit for a different future for our wonderful country and our people.
" It is the hardest thing to leave your loved ones, especially your children, but I take my leave of you with hope that we are rediscovering those things that matter most."
My deep sympathy goes to Evelyn and her family, the world is poorer since she has gone. Her article is a powerful legacy.

Friday, 17 July 2015

Taking the wedding to Nana


 
Aren't they beautiful


It's said there are many stages of grief with Alzheimer's disease for the individuals themselves and those who love and care for them. A complex combination of loss and frustration, of pain both experienced and then forgotten, of joyful flashes of normal and gut wrenching reminders of what has gone. If you have experienced it, I need say no more.
What I have recently learned is that some of that grief is awakened too when external events highlight what has changed. For us it was a family wedding and the realisation that my Mum was not well enough to go.
We discussed it, explored the options, tortured ourselves with what ifs and finally accepted it would not work. It would have caused her huge distress and confusion. But the truth is it caused us huge distress to not include her. On the day she was much in our hearts and in our shared stories; we cried for her absence. 
But then we made a plan. We took the wedding to her in her new home, her care home. I searched for a dress to help her feel special and she did. The care staff were up for it, the family were delighted to do it and so wedding number two happened. The kilts were donned ( even by the Cumbrian great grandsons!)  the dresses unpacked, cakes and bubbly purchased and we took the wedding to her.
We had told her we were coming but the memory slipped past. The care staff got her ready, cajoled her into a new dress, did her hair, put on some make up and finally persuaded her she could do it. She looked absolutely beautiful but never more so when she saw us all arrive. The joy on her face as she saw them take their vows was simply wonderful to witness. Yes tears were shed but on this occasion they were of real happiness too that she was there and sharing it with us all. We cut cakes, vows were read, poems performed, toasts  made and we even  had a first dance. It not only lit up her world but those of her friends and carers too. Stories of weddings were shared, memories awoken, hands were grasped as connections across age groups were formed. It was so important to us all that we could make her part of the celebration but perhaps what we didn't expect was that we would enjoy it so much as well.
It's a strange language we use around care, isn't it. We talk of "putting people in a home." What a reductive way to talk about the need for care. And so our attitudes are shaped. Care homes become a bit scary in our minds, visits there dreaded; they are somehow detached from the communities they inhabit. Is it fears for our own future that cause us to turn away?  We rightly express outrage when care homes provide bad care but that's what happens when we turn our backs on the vulnerable-and those who care for them.
But I'm sharing our story not to complain but instead to encourage others to do the same, get involved, share your good times and little pleasures too with those you care about. I know we will remember both wedding celebrations for the rest of our lives and in some way both were equally precious and special.
I especially want to say a huge thank you to my fabulous family for all they did to make it happen and the wonderful care team at Kirklands. Thanks for making Mums day so special and for caring for her and her friends everyday too. Frankly if I need to be cared for when I'm older, I couldn't think of anywhere kinder.

Friday, 10 July 2015

A Poem for Westminster



 I tend to write poems when I'm moved in some way.Working in Westminster this week was both fascinating and hugely enjoyable. But the shadow of that building has been a powerful one this week when budgets have been spun and webs to trap the powerless have become denser. So the emotion this poem triggered was anger. But I also know that there are those within those uncompromising walls who are fighting for change, for a fairer more equal society. This blog is also to honour and thank them.




The Palace of Westminster



Smells evocative of my

Nana's house,

dark corners and

worn carpets.

wood lined stairs

lead to galleries

of obtuse protocol.

green benches in tired lines

familiar and yet not

front bench smart phones

are tapped,
as argument bounce off

opposed, unheard.

Opulence and decay

symbols of this house

juxtaposed to confuse

the sense of what is real.

A museum to mourn a passing

of a time when we cared

and for what we might become.

Shamed, Im still caressed by its beauty,

seduced by its reach into

a past that was once mine.




Now it's ancient rituals

mock a future

where power is shared
justice secure

Where all voices count

and our land is ours.

Confident in a future

that's ours to shape.

Not a parliament that jeers and mocks

but parliament that listens
reflecting ourselves through

our own glass

Reflections that invite

us to draw our own

fresh images

with shaky forefingers,

excited, creating

a different vision







Thursday, 2 July 2015

Buurtzorg...if not not when?

I wanted to share with you my blog on transforming health and social care. I wrote it after attending a superb session learning more about Buurtzorg form the man who enabled it Jos de Block. Well worth looking into not just for transformation in the health arena but in so many public services. Making the person. and the community at its centre. A full report and the podcasts links will be available shortly. Until then get planning folks! It can be done.....

http://academy.alliance-scotland.org.uk/transformation-of-health-and-social-care-if-not-now-when-if-not-us-who

Monday, 29 June 2015

A love story..


                                                                " When its over, i want to say: all my life
                                                     I was a bride married to amazement
                                           I was a bridegroom, taking the world into my arms" Mary Oliver
When I was a wee girl all I wanted to do was to live in Edinburgh when grew up. I lived in Fife then and we would take the train for important back to school shopping trips or Christmas and the like. The excitement  would start as we crossed the wonderful forth rail bridge and I would know as the we chugged past the castle into Waverley station that city life was for me....but only this city. Now even as an Edinburgher when I walk out of the station and see the castle and the gardens I get a thrill of calling Edinburgh my home.
But nothing could have prepared me for the absolute joy of seeing my son get married to a wonderful woman on Saturday in the city chambers and then walk through this marvellous city followed by three women fiddlers ( one carrying a baby). The mother of the bride was also playing guitar and was followed by the three bridesmaids stunningly strutting their stuff in gorgeous dresses and hot pink stilettos! Cobbles were no barrier to them! Hundreds of tourist witnessed something magical and every face we passed lit up with the evident joy on the faces of the bride and groom. What better back drop than the royal mile to set off from, our city provided a stunning backdrop to this marvelous display of modern Scotland at its best. That walk symbolised for me the whole wedding day and their relationship too, it was full of love, joy, music and so much laughter. To say I shed a tear would be a slight understatement and currently I have no voice! Every union should carry such love and joy.
I gave a mother of the bridegroom speech ( it was a hugely inclusive wedding) and touched on this being one of the days I prayed for when I was first diagnosed with breast cancer when my children were still young. I prayed I would still be there to see them marry someone who loved them, that day came on Saturday and it surpassed all my hopes. I couldn't be more grateful to have been part of such a wonderful day.
 Last week  I was nominated for selection to stand as an MSP in Edinburgh Central, representing the very streets we walked through and the people we walked by on this special day. This deepened my sense of honour at the opportunity to give something back to this wonderful city that is my home. And also I know my life experience has taught me to grab any opportunity in life to make difference. I have been so very fortunate in my life, I want those opportunities for everyone.  
So , confetti gone, heels firmly packed away, attention now back to being selected to represent the guid folk of Edinburgh. Sleeves are rolled up!
 

Thursday, 4 June 2015

Compassion is the new radicalism

I recently wrote this think piece on the workplace of tomorrow 
to stimulate discussion and ultimately action around the transformation
of health and social care. I would love to hear your responses 
and own ideas of what the next steps might be to move to onwards
a future where people really matter in the system.
I used the quote from the Dalia Lama, "compassion is the new radicalism" 
in the title of this blog.
 It's not that I believe it's only compassion we need for the 
transformation to health and wellbeing in our culture and health and 
social care service but without it we will not achieve the difference we seek.
Compassion for ourselves and others will provide the context for reform 
and the wellbeing of our organisations. 
What do you think are the bold steps we need to take to think big, 
act small and that we can start now?  

Friday, 29 May 2015

It's in our DNA...Caring Connections


A poem by Wendy a Caring Connections Coach


What is it like to be a caring connections coach?
It’s about caring and sharing a new approach
Learning from others in a creative way
Drawing and poetry brightened my day
Skills and techniques
To enable us to care
About ourselves and others
Laying our souls bare
We connect in a human way
What matters to me? What keeps me well?
Family nature and love,
Having purpose and goals
Flying free like a dove
We check in, we laugh
Sometimes we cry.
We show compassion
We’re human and authentic that’s why

We listen, we practice
We listen louder
We notice, we feel
Audrey's getting prouder
We're mindful, we’re compassionate
It’s nothing new
But its powerful, it’s transforming
Both me and you
It's only the beginning
As we start to grow
Where will this journey take us?
What seeds will we sow?
Compassion and kindness are in our DNA
Like blue eyes, freckles or even a quiff
Through conversation and coaching 
What worked well and even better IF 
The possibilities are endless
We simply have to share
This privileged approach
The essence of person centred care


Wendy O’Ryan    June 2015.
Thank you ♥ Carol, Jennifer, Alison, Anne, Comfort, Duncan, Victoria, Carol-Anne, Cath, Yennie, Anne, Anna, Kathryn, Karen, Audrey, Viv, Maggie


Transforming care

I started to work independently just over two years ago now. It was a big step but fuelled by my intention to focus my work on the potential for transformational change. Witnessing those transformations in both individuals and organisations is deeply satisfying work. 
One such experience has been working with Argyll and Bute supporting the development of an integrated and person centred network called Caring Connections. A key success factor in the network is developing a group of person centred coaches aimed at supporting change and transformation of care. I have been commissioned to shape the eight week course based on learning from the Esther network in Sweden and other relevant work but also make it appropriate to the Scottish context. In particular the course is shaped to develop the conditions and skills which enable the right conditions for person centred care and the integration of health and social care services.
Consequently we recruit future coaches from across health and social care and third sector. Their backgrounds range from care assistants to nurse consultants and managers in all services. This development is not about hierarchy, it's about having passion and commitment to improving services and a willingness to build awareness of the self and others. And so the course builds knowledge of the context and need for change, working through change and transition, it develops an understanding of continuous improvement. It builds understanding of how to achieve the ambitions of the health and wellbeing outcomes including working with communities, developing yourself and others, understanding wellbeing and transformational change, alongside the core skills of coaching to enable them to enact their learning. But perhaps the main outcome is, as one of the coaches framed it, is the embedding of person-centredness into the DNA of the participants. 
Mindfulness meditation is a core practice too, enabling resilience and building awareness. The group itself is a peer resource which shares learning and experience and builds a support network. From the first weeks people start to use their new skills and see the difference they are able to make just by bringing a fresh approach, a deeper listening, and a greater sense of empowerment. Each session starts with a check-in which in turn builds the group, sharing learning as well as any fears or challenges. Developing a peer approach to support like this is particularly valuable in times of change and transition.The cross sector working too deepens empathy with other sectors and builds interaction. There is a focus on honest feedback throughout using a "what works well and even better if" tool which builds an authentic culture which increases the ability to be sure footed and resilient in times of change.
The highlights for me are when I see the light bulbs come on for people.  Of course this happens at different times for people but what consistently emerges is people who look more confident, less stressed, more engaged with the passion for their work and with a network to support them to continue. We use a combination of learning methods with a strong focus on practicing coaching skills and utilising the wisdom within the group and supporting them to share their learning with others. Throughout the course people develop, shape and implement change projects. These have ranged from introducing a new way to admit people into a ward to changing how a team work together. Our focus is on what's learned from that to apply it to other situations and also to embed a culture of improvement. 
Of course I'm a learner too. I have learned that you don't need to be the most senior person to be an effective person centred coach and indeed change agent,  in fact sometimes professional boundaries can get in the way of that. I have learned that it is key to have a plan for the expected outcomes but be flexible in how we achieve them, working with the live issues in the group too. It's has been reinforced for me that people not only need mindfulness to help them be resilient but also the connection to others. And also the chance to laugh and even to cry when we need to. 
I have been so inspired by the willingness to learn and develop and especially by the commitment of all of the coaches to a person centred service. I have mostly learned that the people who need the services are in good hands and we need to give them the trust and support to deliver their best for others.